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Free, publicly-accessible full text available May 1, 2026
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Free, publicly-accessible full text available May 1, 2026
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Free, publicly-accessible full text available January 1, 2026
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Symptoms-tracking applications allow crowdsensing of health and location related data from individuals to track the spread and outbreaks of infectious diseases. During the COVID-19 pandemic, for the first time in history, these apps were widely adopted across the world to combat the pandemic. However, due to the sensitive nature of the data collected by these apps, serious privacy concerns were raised and apps were critiqued for their insufficient privacy safeguards. The Covid Nearby project was launched to develop a privacy-focused symptoms-tracking app and to understand the privacy preferences of users in health emergencies. In this work, we draw on the insights from the Covid Nearby users' data, and present an analysis of the significantly varying trends in users' privacy preferences with respect to demographics, attitude towards information sharing, and health concerns, e.g. after being possibly exposed to COVID-19. These results and insights can inform health informatics researchers and policy designers in developing more socially acceptable health apps in the future.more » « less
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Privacy Attitudes and COVID Symptom Tracking Apps: Understanding Active Boundary Management by UsersMultiple symptom tracking applications (apps) were created during the early phase of the COVID-19 pandemic. While they provided crowdsourced information about the state of the pandemic in a scalable manner, they also posed significant privacy risks for individuals. The present study investigates the interplay between individual privacy attitudes and the adoption of symptom tracking apps. Using the communication privacy theory as a framework, it studies how users’ privacy attitudes changed during the public health emergency compared to the pre-COVID times. Based on focus-group interviews (N = 21), this paper reports significant changes in users’ privacy attitudes toward such apps. Research participants shared various reasons for both increased acceptability (e.g., disease uncertainty, public good) and decreased acceptability (e.g., reduced utility due to changed lifestyle) during COVID. The results of this study can assist health informatics researchers and policy designers in creating more socially acceptable health apps in the future.more » « less
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Intelligently responding to a pandemic like Covid-19 requires sophisticated models over accurate real-time data, which is typically lacking at the start, e.g., due to deficient population testing. In such times, crowdsensing of spatially tagged disease-related symptoms provides an alternative way of acquiring real-time insights about the pandemic. Existing crowdsensing systems aggregate and release data for pre-fixed regions, e.g., counties. However, the insights obtained from such aggregates do not provide useful information about smaller regions e.g., neighborhoods where outbreaks typically occur and the aggregate-and-release method is vulnerable to privacy attacks. Therefore, we propose a novel differentially private method to obtain accurate insights from crowdsensed data for any number of regions specified by the users (e.g., researchers and a policy makers) without compromising privacy of the data contributors. Our approach, which has been implemented and deployed, informs the development of the future privacy-preserving intelligent systems for longitudinal and spatial data analytics.more » « less
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